2160 hours.
That is what I have left before I have my surgery.
I have come to realize that, even on the days when I second
guess my decision, the decision to remove my stomach is the only option I
really had. So the quote from the movie
“Young Frankenstein” is appropriate. In
the movie, Gene Wilder’s character, Dr. Frankenstein, has done everything he
can to change his identity from that of his Grandfather, Baron Victor
Frankenstein, the mad Doctor who created the first monster. In the end though it is in his DNA. He is genetically destined to continue to
carry on his Grandfather’s footsteps.
Genetics…
So here we sit, my sister Melanie, my Mom and myself, all
with this genetic code buried deep within us.
Our Frankenstein monster just waiting to rear its ugly head. All three of us carrying on the legacy from
generations past. Will it even show
itself? If it does, then in what form? DESTINY, DESTINY…. You get the drift.
I also realize that as strange as this is to me on days, it
must also sound pretty strange to you all.
The question I get the most is “can you live without your
stomach?”. I can and I will. There will be some stuff that will need to
come off my menu for a time. Some of my
favorite foods like prime rib and pizza will be the first to leave. The pizza light at Roger’s Pizza
Kitchen will be dark for a while.
However, the Doctors assure me that over time I should be able to eat
all my favorite foods again. It will
just be in smaller portions. Then there
is beer. Yes, I will drink beer again,
someday. Most likely sooner than the
Doctors want me to, but the beer drinking gene, like the CDH-1 gene, is buried
deep within my genetic makeup.
So I am 90 days out.
Did I do anything to mark the date? Nope, May 6th was just
another day for me. I guess I did write
this blog, but there is no 90 day count down on a calendar. No start of a food pilgrimage that would have
me eat my way around the Twin Cities. I
did go out and by a Ninja juicer that I will need after the surgery. I brought it home and couldn’t open it. It just sat on the floor.
I spent some time on the phone this week with the founder of
the “No Stomach for Stomach Cancer” organization. The foundation is dedicated to the fight
against stomach cancer and the support for people with the CDH-1 gene
mutation. There are stories on their
website of folks just like me with the CDH-1 gene mutation. What they have gone through and how their
lives have changed. There are also
stories of people who found out about the CDH-1 mutation only after stomach
cancer had been discovered. In too many
cases these stories only go on for a short time before they end. Yet, all the stores are full of life and
hope. These stories reassure me that I am making
the right decision.
The surgery is set for Tuesday August 4th. I need to be down to Mayo sometime on Monday
3rd. I will most likely be
in the hospital 4-5 days. After that I
will be out of work for about six to eight weeks depending on how I heal and
adapt to my new lifestyle.
HOWEVER, on August 1st Hanover is holding its
annual Hanover Harvest Festival. Food,
Beer, Bands, and Fireworks. Since it is
the final weekend before my surgery, we are thinking of having one last blast
to send my stomach off in style. If we
do, will you join us? Let me know..
Maybe we will find a way to throw Young Frankenstein a wall
or something and have a mass showing. It
is a fabulous movie.
I'm friends with the monster that's under my bed
Get along with the voices inside of my head
You're trying to save me, stop holding your breath
And you think I'm crazy, yeah, you think I'm crazy
(The Monster. Eminem)Get along with the voices inside of my head
You're trying to save me, stop holding your breath
And you think I'm crazy, yeah, you think I'm crazy
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